Life of Vitiligo Patients | 6 True Stories

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People with vitiligo are often mistreated, looked down or shunned from society. Very few people understand that it’s a skin condition which is not fatal or contagious. People with vitiligo have to struggle mentally and emotionally more than physically. The way society treats people with vitiligo, it only worsens their condition and makes them withdraw from society.

Apart from the physical stress they feel, society’s behaviour towards them leaves a deep scar on their mind and many of them get into depression. Life becomes an everyday struggle for them, and people tend to hide from others. But there are some strong people who shared their story of struggle with everyone to lighten up society and raise the voice against the social stigma. These stories open our eyes that how crucial society can be towards physical outlook and how people with vitiligo feels like. Vitiligo is a never-ending journey, but our affectionate behaviour can make someone’s life easier.

Patients Stories

Amit Singh: encouraging life every day

While the society tries best to corner him, he encourages himself and always tries to make people understand that it’s just a different skin tone than others. This brave-hearted man knows how to face society with courage and takes only positive vibes. Am amazing story of inspiration for all of us!

Keya Anand: why I have to paint myself?

She is fighting vitiligo since her 5th grade and ever since society never missed a chance to make her feel low. Even her own parents used to tell her to cover herself and hide the white patches. Medicinal creams were given to paint her patches to look normal. Even after been through such a rough phase, the brave girl dared to share her story with us.

Rahat Khan: I want to Live!

In his turn of sharing his story, he managed to write at times he wants to end his life but in reality, he wants to live a normal life. Instead of writing a long story of sufferings, he only wrote that he is speechless and have no words to share his sufferings.

Shreya Gupta: who cares if you are judgemental.

The brave-hearted girl accepted her white patches with open arms and understand that its only a skin condition that requires a bit more expert care. While she lost all her friends due to these white patches, she made friends with them. Although society never missed to being judgmental, she believes in leaving a happy life. Such an inspiration and answer to social stigma!

Uditi Menon: are we really in the 21st century?

Once she was proud to have the white patches as she used to think that she is different. Well, this feeling lasted only for a while and the society reminded her that a girl with vitiligo is not a desirable one in the matrimonial market. Since her age of eight years, she has been facing such question like who will marry her which not only remind her but also questions if we are actually living in 21st century.

Rayna D’Souza: is an outlook that important?

She was bullied since her school age and had even rough college days. All because of her different skin tone which makes her question if the whole world is so cruel or if it’s only in India.

Can you relate to their stories? Which of them connects to you more? Do these stories help you to a bit more affectionate towards people with Vitiligo?

Vitiligo can be treated and, in some cases, can be cured too. But all they need is some empathy and acceptance from us to fight through the journey.

THE MYSTERY OF THE DISAPPEARING WHITE SPOTS

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A 27 years old young healthy male reported to the skin OPD with complaints of white patches over his arms and thighs since 8 months. On examination the spots were flat white spots & were numerous and distributed over the arms and legs most of them measuring less than a cm in diameter. the spots were quite subtle almost playing hide and seek looking prominent at sometime and then not so obvious at other times It didn’t fit in clinically with the most common skin issues of similar look ie fungus, allergy, sun sensitivity etc. Routine blood tests Complete blood counts , liver , kidney function tests, thyroid , blood sugars were within normal limits and gave no further insight whatsoever The patient had visited couple of doctors who just like us couldn’t really come to a final diagnosis and he was treated as a case of fungus, allergy white patches with no improvement at all; the case was turning to be most eluding yet teasing,it was like the spots were taunting us having a secret laugh at our ignorance. With nothing more to offer to the patient we admitted to the patient yes even though we are supposed to be specialists we had no clue as to what we were dealing with and we thought let us sleep over this and rake our brains at a later date

Skin Laser Centre
image 1

Thankfully the patient was patient and persistent, and he had more trust in our abilities to help him than what we had frankly and were all about to throw our hands in the air when we noticed that his arms appeared slightly red kinda flushed. So we had a new clue and we started to prod deeper into that and the patient revealed that the redness is very much there on and off but it doesn’t bother him like pain or itch so he choose not to discuss that We then started a cross reference transient redness, flushing we dug into our books and online research ( Dr Google ) threw up a picture akin to our patients condition and we had the diagnosis it was BIER spots, a rare entity but nevertheless reported and published.

So this is how it goes when the patient raises his hands as shown in image 1 they disappear and when the patient puts his arms down the blood gushes down, the flush increase and the white spots reappear magically shining like stars in a dark moonless night (image 2).

In the image 3 we can see both the arms the right is red and beefy and left pale as it had been just raised for a few seconds a moment ago which had emptied the veins ; the contrast is startling and was staring in our face  Like a kid who has been give a free access to a video game parlor we were grinning and asking the patient to raise one arm and then the other and get them down and so on, even he was mesmerized to see the changes in his body happening with a bit of help from gravity The white patches would crop up the moment his arms were hanging

Skin Laser Centre
image 2 & 3

down in the dependent position and disappear in a jiffy the moment he raised them and even though I’m considered a specialist in treating vitiligo ( White Patches ) I swear I have never seen any white patch getting cured at this speed. Medical literature dispels the mystery behind this phenomenon as abnormal Vascular response to venous hypertension and tissue hypoxia so if u see that’s what was happening But the thrill of making this rare diagnosis was a eureka moment for me and my colleague Dr Nupur, the sweet pleasure of arriving at a diagnosis was just divine . We literally patted each other on the back Good job and after a long slog in the OPD we raised a toast ( with tea In thermacol glasses) and exclaimed Elementary Dr Watson Elementary I know some of u must be wondering why I’m so excited to sit down and write a article about this simple condition but it’s something u really go to experience yourself , and in the end it’s the small pleasures that really count in this beautiful journey of life, for these are the drops that become the ocean, and is it not that the entire ocean is in the drop……

― Dr Paul

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